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Posts tagged ‘Autoimmune disease’

There is HOPE: We Can Feel Better!


I want to share this article with you today along with my story…
(see link below)
 
I have 5 Auto-immune issues along with a few other health problems. One of these issues I’ve had ALL my life, the next was diagnosed in my 20’s. The 3rd in my 30’s…4th and 5th in my 40’s.
 
By the time Fall of 2017 came around I was in really tough shape and thought I’d be in a wheelchair within 5 years. I literally couldn’t exercise. I worked with a Physical Therapist who acknowledged too that any exercise program seemed to be too much for my system and we talked about starting out really slowly. I’d try to bike on my recumbent bike and after 10 minutes I’d be exhausted and have a hard time walking up the basement stairs.
 
Now let’s talk about what changed.
 
That same Fall of 2017 I decided to try some plant based supplements that my friend kept telling me about.
 
I had been a lot of pain and my Rheumatologist wanted me to start taking a stronger prescription drug that I knew could have really bad, permanent side effects and I just didn’t want to put that in my body.
 
I started taking the supplements like I take my prescription medicines…faithfully, every day…and I started to see results.
 
Within a week my bloating was gone. Within a few weeks I realized my sugar cravings were gone. Within a month I realized my pain was less. Within 6 months I was dropping prescriptions (under the careful eye of my Dr’s). Within a year I was taking 8 LESS prescriptions.
 
Fast forward to 2 weeks ago…and I decided to try this exercise thing again.
 
The first day I got back on our recumbent bike I rode 5 miles in about 23 minutes. AND…I got off the bike and walked spryly up the basement stairs. I’ve committed to biking 5 times a week.
 
Yesterday I rode 7 miles.
 
The moral of the story?
 
There is hope.
 
How did these supplements help my body?
 
Contact me and I’ll tell you.
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If you have Autoimmune Disease(s) and exercising causes flares, please read this:
Exercise Intolerance and Autoimmune Disease

Four Angels and a Cigar, Part 4…On with Life


As life moved on, I found some interesting projects to keep myself busy with.  One of which was the metal swing.  Now, remember it looked like this?

IMG_1420

I debated painting it bright red with white arms/base, which was what my parents looked like, but then I found a gorgeous turquoise color.  It was love at first sight. Read more

Four Angels and a Cigar – Part 1 of 4


{After I read this blog yesterday: Finding Your Voice, I was inspired to publish this series of posts that I had started writing last year.}

No this is not a joke post, although you may find a few things funny on the way to the cigar.

And so here we go…

Let’s start with a little background: Read more

Booster Cables Attached…Charged and Ready to Go (Chug, Chug)


How do you start blogging again when you’ve taken such a long break? (It’s been almost 5 months.)

This is the question I’ve been struggling with for a few months.

I figured I needed a catchy title…which, of course, prolonged the process. Read more

I Almost Forgot I Was Sick…


STOP!

If you’re looking for a funny post, this isn’t it.  Nor is it a home decor post, or a cute kid saying post, or a religious post, or an art post.

What this is, is a health post.  Not a whiny, woe is me post, but rather an epiphany post.

Late last week I picked up a prescription at one of our local pharmacies, and as I watched them through the drive-through window, my heart leapt and I thought…I could work there…I could do that!

And then came the epiphany…No, sadly, I couldn’t.

Not because I couldn’t learn what to do, nor because I lack the customer service experience.  But because my health wouldn’t allow it.  {ok, I whimpered a little here…ok, in all honesty I said “damn”.}

In the past year, my Sjogren’s Syndrome has gone from being a somewhat silent illness (under control with the right medicine…as long as I didn’t overdo it), to my daily foe.  15 years ago I was known as ‘The Energizer Bunny’ – able to multi-task with the best of them; juggle job, motherhood, work, community plays, you name it – I had energy for it.  13 years ago, I couldn’t seem to find any energy, I hurt everywhere and became depressed…I’d just had Gabi.  It took 2 years for doctors to figure out it was Sjogren’s Syndrome causing the problems.  Medication helped tremendously until last Fall, when my body fell apart.  Now don’t get me wrong – I’m better than I was a year ago – the shoulder has been fixed, the lower back/sciatic is lots better – it’s the regular Sjogren’s stuff that’s still running on high.

There are millions of people who have Sjogren’s – in fact approximately 4 million in the US.  And there are millions more with RA, Fibromyalgia, MS, Lupus, and many other auto-immune diseases.  These are the group of chronic illnesses described as ‘Invisible Illnesses’.  Why?  Because you don’t see a limp…or an open wound…or a cast.  You can’t see it…period.  On any given day ‘we look good’…in other words, we can’t be very sick…right!?!  Wrong.

Auto-Immune Disease is described as ‘when your body’s cells attack themselves’.  No need for an infection to get you sick…your system does it for you.  Infections just make it that much more fun (jk) – they just throw your disease into high gear.

It can be like having the achy flu EVERY DAY…or being so tired that you can hardly keep your eyes open, even when you’ve had a good night’s sleep…or your joint pain may flare up – with or without exercise…or your eyes and mouth are so dry that you need medicines, surgeries, or dental work to help…or you may get hit with Brain Fog and it leaves you wondering if you are getting Alzheimer’s because you’d swear your child never told you the fact she insists she did – even though your spouse saw it.  There’s no cure, but there is medication to help (thank God).

There are so many more symptoms that all these diseases bring with them…and so many levels within each illness.  Some people are better than others.  Some unable to work…while others can.

We need to all remember this – there’s no “ONE SIZE FITS ALL” auto-immune disease level…so PLEASE don’t judge others.  A – you don’t know what health issues they have…and B – you never know what someone else is going through in their lives.

I think I can speak for most people who have auto-immune diseases when I say the following:  If you don’t understand what I’m talking about above, we pray you never do…because sometimes the only way to understand what someone is going through, is to go through it yourself…and we hope you never have to.

And if you do understand, thanks for the moral support…know that I’m here for you if you need an ear, or a gentle hug…and best of all…I believe you.  Let’s keep smiling…whether you dress up or have a sloppy day…do whatever makes you happy – and don’t forget to look for the BLESSINGS and HUMOR in everything!

As for the job thing…I’ll keep watching these two funny, little, daycare babies…we can hang out and color, or work on our alphabet, or rock-a-bye.  And sometimes we (they) run, chase Motzy, or march around the couch playing cymbals while we listen to John Philip Sousa on the stereo.  They’re pretty flexible with how I’m feeling…and thankfully, so are their parents.  These two little girls bring great joy to me – I hope your life is just as blessed!

Have a great weekend!

Patty O

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